Brain paralysis at 2 and a half years, Octavia needs help

After only six months of pregnancy, little Octavia comes to the world on January 16, 2023 in Rouen, premature. Health troubles are just beginning.

A real sequelae

Quickly, the child suffers from brain bleeding, which will cause a cerebral paralysis. But at that time, the parents of Octavia, Cléa and Ludovick, did not suspect it.

“Doctors never told us about what she had finally. We were told that she was stiff, that it would come over time, that it was necessary to do exercises, etc. We learned for the cerebral paralysis By reading the balance sheets. We saw that the fact thatShe doesn’t workthat she had concerns of motor skills, it was not only linked to a late maturitybut that there was really a sequelae“Explains the mother.

Spastic brain paralysis

When the parents question the pediatrician, they are sent to a physiotherapist, then to a social medical center, so that Cotavia receives care.

“This is where we in fact inquired about cerebral paralysis,” explains Cléa. It is a spastic cerebral paralysis which implies that it is very steep in terms of legs, upper body, arms. She manages to progresseven if she is late. These are above all the legs that are steep. At the very beginning, she walked on tiptoe all the time. We inquired and we understood what his pathology was really. Physical sessions will not be enough. »»

Heavy treatments

In addition to its physiotherapy sessions, Octavia receives injections of botulinum toxin. “They come to inject the product directly into the muscles to soften them,” explains Cléa. This allowed him to lay the heels, and Less crossing your legs. This is where we thought it was going to have to do intensive courses ».

Physiotherapy and occupational therapy sessions (Treatment of rehabilitation and rehabilitation to help people with disabilities to preserve their autonomy, Editor’s note) multiply. However, everything is not supported. And on the finance side, the question poses a problem. The internships, necessary every two months, rise to 130 euros per week and DMI (dynamic movement operation, effective therapy for conditions such as cerebral paralysis or neurological lesions, Note) amount to 180 euros. Not to mention the costs of road and accommodation.

The family would also like to be able to go to two renowned centers located in Spain, at Intensive methods.

“But it’s 1,200 euros per week, plus the journey and the accommodation on site,” sighs Cléa. So many expensive care that justifies the birth of the Association Un Pas with Octavia, created in December 2024. The association will thus organize a connected race to collect donations.

“It’s a bib that is sent by email” explains Cléa, Octavia’s mother and president of the association. The bibs, sold at a price of 7 euros per unit, or 12 euros for duets, will finance the care.

“Everyone takes their bib and can run or walk. We offer two categories so that people can choose when they want, where they want and with whom they want to participate. »»

A different organization of classic races since it allows participants take part Depending on their own conveniences, between September 8 and 28.

Participants will be able to run or walk when they want: “Send us your screenshot of the number of kilometers traveled with time and date. Because even if there is no limit, we need evidence for the awards. And for those who would like to allow us to share this moment with you, do not hesitate to send us a photo or video of you before, during or after the effort with your bib (indicating to us if we can put it on the networks) », explains the organizer.

Key awards

To motivate participants, the association will reward the first three of each category (walking and running), namely those who have traveled the most kilometers. These will be given gift cards from Illicado. The first of 40 €, the latter with a value of € 20, the third worth € 10. And for children (-14 years old), the first of the walking and that of the race will receive a gift card worth € 15.

At the end of the events, a draw will make it possible to win two gift cards of € 75, to spend at McArthurglen Paris-Giverny. The purchase of bibs will start on August 15. The opportunity to do a good deed while doing some sport.

What future for Octavia?

“Doctors never rule on the aid of octaviabecause the child’s brain develops from 0 to 6 years old. This is where all connections are created. The important thing is stimulate Otherwise she will not evolve.

To make a donation: https://www.helloasso.com/associations/un-pas-avec-octavia

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