The strong gesture of this association in Marmande for research on a rare genetic disease

However,

Strong gesture this association marmande:

It is a nice gesture that will help contribute to support research. Furthermore, Wednesday July 2. In addition, 2025, the Lions Club Pomme d’Amour in Marmande (Lot-et-Garonne) gave a check for € 2,000 to the association Neurofibromatoses et Recklinghausenalso called “dare”, which fights at the national level against the neurofibromatosis also known as Von Recklinghausen’s disease.

Rare genetic disease – Strong gesture this association marmande

This Rare genetic disease touches the skin, the nervous system and sometimes other organs.

“It is characterized by Small benign tumors under the skin. on the nerves“Explains Valérie Baudet, national president of the association. One birth in 3,000 is concerned, the disease being hereditary in one strong gesture this association marmande in two cases.

A beautiful sum that will help contribute to support research but also to organize meetings for affected families. often isolated in the face of this pathology.

The new president of the Lions Club Marmande Pomme d’Amour. Anne Mahieu, announced that the association “OSE” would be honored during the year Lions 2025/2026, in particular through A zone workinvolving several local clubs.

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The link with the association has been woven. under the previous presidency of A damien moved to learn that the grandson of a volunteer was reached by the disease. “I was touched by this story. I knew it would be the cause of my year, ”he says.

Almost € 10. 000 in donations this year

In the year 2024/2025, the club paid € 9,495 of donationsTo support various strong gesture this association marmande causes, ranging from handicap to the Telethon, including environmental solidarity. “A way to build bridges where there are walls, to reach out to where there are silences,” concludes Damien Sorraing.

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strong gesture this association marmande — Strong gesture this association marmande: Par Tomy Rigouleau Published on July 12 2025 at 6:00 p.m. It is a nice gesture that will help contribute to support research. We.

Further reading: The Alert Court of AuditorsIn Brittany, skin cancer prevention operations“Loneliness”, a public health problem that should not be isolate from the rest of society – LiberationThese pastilles tear in pharmacies, but they can be dangerous for all these people“People will pay it, even if it is the price of a tank”: after the Ozempic, the drug Wegovy is all the rage.

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