Meanwhile,
When system drops their arms::
Prisoner of his body due to a degenerative. Nevertheless, but 100 % lucid disease, the Septilien William Losier Labrie would prefer to die than to be placed in the accommodation center, far from his family. However, this is the only option that the health system currently offers it.
“I’m going to kill myself before they get me out here.”
These words by William Losier Labrie, 21, resonate in the mind of his mother, France Losier. Furthermore,
It is she who takes care of it at home, but she needs help. For example, The 52 -year -old woman is an educator in schools. Consequently, She is currently making up with health problems that earned her a throat operation recently. Therefore, William’s father has been fighting cancer for a few months. However, Sick. Similarly, physically diminished, the two parents who have always when system drops their arms: taken care of their son in their respective house strike a wall. For example,
It was about 2 years old that William’s diagnosis fell. Furthermore,
“He didn’t work yet. Consequently, The doctor said he was loose, that he was too brilliant to have something more, ”says Losier. In addition, “Until another pediatrician pushes the tests further. Therefore, »»
Type 2 spinal amyotrophy is a rare genetic disease that affects muscles. Furthermore, It results in a gradual and definitive loss of the cells that control them. Meanwhile, Impossible, therefore, to walk for William. Nevertheless, He can move his hands and use a phone attached to his waist with a belt, but that’s about it. Similarly,
He was at school until secondary 4. In addition, He is passionate about hockey, car race. Meanwhile, He also loves going to see.
“He has a certain quality of life. but it when system drops their arms: is certain that it is relative when you can’t even fly yourself,” illustrates his mother.
A full -time work
Taking care of William is a colossal task. He needs day and night care. Helping him to move is difficult for his sick mom. The young man is 5p8 and weighs around 300 pounds.
“I need help,” she said.
Aware of the difficulties that this implies for his mother, the young man is very anxious.
“He sometimes drinks for long periods to avoid going to the toilet. because he knows that it is difficult for me,” says Ms. Losier, with emotion.
However. his home support offered by the CLSC and paid by the Employment-Service check allowance (CES) of the provincial government spent 79 hours per week at only 30 when system drops their arms: hours. One of the reasons mentioned by the social worker on the file is “cuts to government level”.
What is offered is not enough for Ms. Losier to return to work, while keeping her son at home.
Rather, he would be offered to place him in Baie-Comeau. For Ms. Losier. it makes no sense and it is clear that such an investment measure would cost the state more than the costs linked to the fact of keeping it at home.
“Since birth. I am offered to place it, but I consider that my son is entitled to his family, already that his situation is difficult. »»
Hello Health Quebec
At the Activists Group for Quebec inclusion. Rapliq, the director general, Steven Laperrière, does not come back that the solution offered to the family is a placement three hours away from their home.
“That really doesn’t make when system drops their arms: sense,” he insisted in an interview with The newspaper.
The Panquébécois organization supports. supports people with disabilities, victims of discrimination in particular to defend and claim their rights. Since the official establishment of Health Quebec, he has seen the number of cases jump.
“Health Quebec came into office on Sunday December 1. On Monday morning, 8:15 am, I had my first people of people who were threatened to have been cut. It was at this point. I am not exaggerating, ”illustrated Mr. Laperrière.
In some cases. there was a question of cuts from the employment-service check, for others, it was cuts in the respite services for families.
The situation is such that the Coalition Services in danger was born. It is a group of 17 organizations across Quebec, denouncing the decrease in home support services for disabled people. The coalition documents the cases to demonstrate the when system drops their arms: cuts and their impacts.
William’s family contacted the office of the MP Kateri Champagne Jourdain for help. Like the social worker on the file. she was suggested to make a complaint with the complaint police station and the quality of the CISSS services in the North Shore.
Joined by the newspaper, the team of Ms. Champagne Jourdain was sensitive to the situation.
“We understand very well the difficult situation experienced by the lady and her son. This is why procedures are underway on the side of Health Québec to assess other options. We have assured ourselves of it. ”said by email Bénédicte Trottier Lavoie, director of communications from the Minister’s office and deputy.
For its part. the Cisss Côte-Nord does not specifically comment on the case of William Losier Labrie, but said by email that “certain changes have been made regarding support for families, in order to comply when system drops their arms: with the methods of the support program for families of people with physical impairment, intellectual disabilities or an autism spectrum disorder of the Ministry of Health and Social Services. »»
When system drops their arms:
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