Moreover,
Endometriosis: better form caregivers inform:
«Lots of people think that rules of rules are normal. Moreover, that they are chocohots, women. For example, The persons concerned internalized it: they were always told that it was normal to hurt during the rules“Explains Frédérique Perrotte. However, head of the Ile-de-France Sud endometriosis sector. Therefore, “”A caregiver who thinks like that, he will not train. Nevertheless, There is a whole job to do on representations, awarenessShe judges. Similarly, In France where she affects one in ten women – 200 million women worldwide. Moreover, according to the World Health Organization – this disease linked to the uterus mucosa, called endometrium, is synonymous with seven years of diagnostic wandering on average. However, In 2022. Nevertheless, President Emmanuel Macron announced a national strategy to better diagnose and take care of this chronic inflammatory hormone -dependent disease with many manifestations – pelvic pain, urinary, lumbar, digestive, endometriosis: better form caregivers inform infertility, etc. problems, etc. – for which there is no curative treatment. This national strategy is accompanied by a research program “women’s health. couples health“(Said Pepr), endowed with 25 million euros over five years (for more than half dedicated to infertility) and the creation of regional sectors, funded by regional health agencies.
«Concretely, the sectors must create a site, a directory, set up training for caregivers, school nurses, midwives, pharmacists … Who can then tell a woman: it’s still weird your symptoms. there is a sector in our region, look at which professionals go see“Explains Ms. Perrotte.
Therapeutic education programs, allowing patients to know their disease well and to be actors in its management, develop.
Therapeutic education – Endometriosis: better form caregivers inform
Thus the endo-idf.fr website and the Ile-de-France directory, list 390 health professionals (nurses, osteopaths, physiotherapists, dieticians …) various, this disease requiring multidisciplinary support. According to the Ministry of Health, endometriosis: better form caregivers inform “ten“Regions have sectors”totally deployed». «Women need a professional who hears their pain. will be able to start treatment or guide them», Adds Marie-Paule Bernicot, endobreizh coordinator, the endometriosis sector of Brittany with 300 caregivers listed.
It supports the two main associations dedicated to endometriosis in France. Endofrance and Endomind, during conferences organized at the request of cities, associations, mutuals. The coordinator also guides companies “who wonder about the establishment of menstrual leave” – not yet established by law -. or”Stops for incapacitating painsAnd intervenes in colleges/high schools. “”A hummingbird work …“, She said. Another axis of the national strategy: Therapeutic education programs. allowing patients to know their disease well and to be actors in its management, develop.
Endomind contributed to the construction of 25 programs. as much in preparation, to “Paris, Besançon, Aix-en-Provence, Nîmes, Nantes, Toulouse, Calais, Lille …. soon BordeauxSaid Véronique Pereira, an expert patient (patient who has become endometriosis: better form caregivers inform a mediator with other chronic patients), who develops them with caregivers. Now there is an emergency: “Women need them to be helped to improve their quality of life. have less pain, digestive symptoms“, She said.
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