Essential
- Dunbar syndrome is a rare disease characterized by the compression of the celiac trunk by the arched ligament of the diaphragm.
- In an American patient, this pathology was manifested by significant weight loss, constant vomiting, abdominal pain and nausea.
- After an operation of more than eight hours, which saved her life, she “regained weight gradually” and her organs were in a better state.
While Kristina Bayus-Roszak, 29, was in good health, she suddenly falls ill. In detail, the young woman, from Cleveland in the United States, suffers from disabling symptoms, such as constant vomiting, abdominal pain and nausea. In just six weeks, she lost 13 kilos, according to the media GetSurrey. “My body was turning off. I was slowly dying of hunger”she said. Worried, the patient goes to a doctor who diagnoses her ailments. According to him, it is Dunbar syndrome.
Dunbar syndrome affects 10 to 24 % of the general population
Described for the first time by Harolja in 1963, Dunbar syndrome is a rare congenital pathology caused by the compression of the celiac trunk by a fibrous band of the diaphragm called median arched ligament. This anatomical variant, which affects 10 to 24 % of the general population according to the journal of the Faculty of Medicine and Dental Medicine of the Catholic University of Louvain, causes recurrent abdominal pain and weight loss. “Pain is epigastric, diarrhea or constipation can also be present. It is generally presented, but not always, after ingestion of food and can be associated with nausea and vomiting. Other clinical signs can be weariness, intolerance to effort and vomiting”, Indicates the Orphanet.
Dunbar syndrome: more “than 18 to 22 months to live if I was not operating”
After the announcement of the diagnosis, Kristina learns that her days are counted. “The doctors told me that I only had 18 to 22 months left to live if I was not operating. My case was one of the most serious they never seen.” Since in the United States, there is no surgeons capable of operating several compressions simultaneously, it must go to Germany where it undergoes an advanced ultrasound. Subsequently, the patient receives a diagnosis of five other extremely rare diseases, all characterized by abdominal vascular compressions.
During examinations, health professionals found that the kidney of the American had become black because of the lack of blood circulation. A week later, the twenty -year -old was transferred to another hospital and undergoes a specialized surgical intervention. The operation which saves his life hard more than eight hours, during which the surgeon discovers that she also suffered from an abdominal aneurysm which could have broken in a month if he had not been detected.
“The processing options” against Dunbar syndrome “are limited”
Two years later, Kristina is healthier. “I am doing much better and I can eat again, which I will never consider to be acquired again. I also gradually regained weight and the state of my organs has improved considerably. I no longer suffer from chronic pain and I can resume my favorite activities, like hiking. I found my life. (…) I would like people to know how much people suffering from vascular compressions and rare diseases are strong. processing options are limited, and half of health professionals do not even understand this disease. “
